Families for HoPE, Inc.

Sharing the HoPE in HoloProsEncephaly

Articles

Document Library

NameDescription
DocumentParental Perspectives on Living With a Child With HoPEParental Perspectives on Living with a Child with HoPE (2010)
DocumentManagement of Children with HoloprosencephalyManagement of Children with Holoprosencephaly (2010)
DocumentBeyond the Face Predicting the BrainNeuroanatomy of Holoprosencephaly as a predictor of function: Beyond the face predicting the brain (2006)
DocumentThe Decision to ContinueThe Experiences and Needs of Parents who Receive a Prenatal Diagnosis of Holoprosencephaly (2002)
DocumentGene-Environment InteractionsGene-Environment Interactions in Rare Diseases that Include Common Birth Defects (2005)
DocumentSepto-Optic Dysplasia ComplexSepto-Optic Dysplasia Complex: A Heterogeneous Malformation Syndrome (2006)
DocumentPrenatal DiagnosisPrenatal Diagnosis, Phenotypic and Obstetric Characteristics of Holoprosencephaly (2002)
DocumentPerinatal Risk FactorsA Retrospective Survey of Perinatal Risk Factors of 104 Living Children with Holoprosencephaly (2004)
DocumentPlastic Surgery ConsiderationsPlastic Surgery Considerations for Holoprosencephaly Patients (2004)
DocumentEvaluation and ManagementEvaluation and Management of Children with Holoprosencephaly (2004)
DocumentEEG in HPEElectroencephalography in Holoprosencephaly: Findings in children without Epilepsy (2003)
DocumentMIH Variant of HPEThe Middle Interhemispheric Variant of Holoprosencephaly (2002)
DocumentEndocrinopathies in Central CNS MalformationsEndocrinopathies associated with Midline Cerebral and Cranial Malformations (2006)
DocumentNeurocognitive AssessmentThe Carter Neurocognitive Assessment for Children with Severely Compromised Expressive Language and Motor Skills (2004)
DocumentMIHMiddle Interhemispheric Variant of Holoprosencephaly: A Distinct Cliniconeuroradiologic Subtype (2006)
DocumentHPE Mythologic and TeratologicHoloprosencephaly: A Mythologic and Teratologic Distillate (2010)
DocumentIntroduction - MuenkeIntroduction to the American Journal of Medical Genetics Part C on Holoprosencephaly (2010)
DocumentHPE FlashcardsHoloprosencephaly Flashcards: A Summary for the Clinician (2010)
DocumentDiagnosis and ManagementHPE: Recommendations for Diagnosis and Management (2010)