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Why HoPE?
While addressing the audience at the 1st NIH Conference on Holoprosencephaly (HPE), Dr. Francis Collins, Director of the National Human Genome Research Institute, noted that HPE is one letter short of spelling “hope”. He challenged his audience to be the “O” team and find the missing letter needed to change HPE into HoPE.
Today, Families for HoPE, Inc. is helping to keep that spirit of hope alive.
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Families for HoPE, Inc. was formed in 2006 by a group of parents of children diagnosed with holoprosencephaly (HPE). Families for HoPE is incorporated in the state of Indiana and is a charitable organization as determined by Section 501(c)(3) of the Internal Revenue Code.
These dedicated parents first met through an online support group started by a small group of parents seeking information about HPE. Today, that online support group is over 500 members strong!
Families for HoPE seeks to share the HoPE in HoloProsEncephaly!
Our programs include:
parent-to-parent support
grief support
educational materials about HPE
educating the medical community
public awareness
We hope you will join with Families for HoPE in sharing the hope that we have found in HoloProsEncephaly.
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